Originally Posted by Wolfgang
Just as we get settled in here we find out that our youngest daughter Erika 21, was diagnosed with Epithelioid Hemangioendothelioma (EHE). This type of cancer is very rare, only about 20 new cases are diagnosed in the US each year. Consequently information and case studies of this disease are very hard to find.
The reason I am posting this here is to see if anyone knows of others with the same condition, or of Doctors or Hospitals that have been involved in the treatment of EHE. In an effort to reach out to others Erika has started a web page at www.carepages.com
her page is : Erika0925.
I you have have any information please post it on her web page or e-mail Emily at [email protected]
We are all monotoring her site constantly.
We are encouraging her to go on with studies and work as normal as possible and we will do the same. At this point we are still planning to attent CCR.
Thanks for taking the time to read this, and please if you have any info please let us know.
Dang wolfgang, I can offer our prayers for your family and Daughter.
also I would contact Dr. Alvarez (sp?) shoot I cannot remember his first name now, but they practice in Tijuana some unorthodox cancer treatments that actually work,
I have the information here someplace but I am POSITIVE it is packed up and won't be fouind until we get moved, they have a full cancer treatment center there just over the border, we found out about them when a friends wife had some cancer and was told she would not survive, they sent her there and after about a 3-6 month treatment she is still fine (over 10 years later)
he also wanted to treat my friends son but by the time we were able to get the information my friends son passed on.
that Doctor actually called my home personally
Alverez treatment facitily shoot what is the dang name of that place!
this might have been it, although I'm not sure that was his first name.
*Stella Maris Clinic, Gilberto Alvarez, M.D.
Treatment: detoxification, enzyme therapy, laetrile.
PO Box 435123, San Ysidro, California 92143, U.S.
just to let you know if you do a search on cancer survivors, you will find many that were diagnosed with all kids of difference cancers in the US and told there was no hope and were cured in Tijuana or so it's said, i only know of one personally they went there got cured after being told she had like 6 month's to live here in the US